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| {from Jack} |
Wyatt did really well while they were gone, and Josh took amazing care of him. He didn't need any night treatments, and his peak flow numbers continued improving, which was fantastic! Logan, unfortunately, had a series of small seizures while at the park Saturday, but Jack knew what to do and sent his cousin to get Grandma, who was just a few steps away with Wyatt. Logan was fine, not even tired afterward, and fully recovered with no effects. As I said with his seizures last weekend, we are in the middle of titration schedule with a new medication (slowly weaning him on) so it's just a waiting game to get him to a full dose. Once he is fully on that medication (which will control the big and small seizures) we will slowly take him off the other medication that only controls the big seizures (and can actually trigger more of the small seizures).
My time with Carly was much-needed as I was able to really just enjoy her and remind myself what a gift she is, both because of her age (two is so much fun!) and because she is my daughter (having a girl is so much fun!).
I am proud of myself for taking time out for me, and thankful for Josh for recognizing what I needed and giving it to me. Thanks, babe!
Feeling... much more like my old self. I'm not sure if it's because of the weekend to myself or if it's because I adjusted my meds (I'm on Prozac) down from 40mg (which made me feel shaky all the time) to 30 mg, but it's awesome to feel like ME again. I am optimistic about the future, feel like I can face anything, and am looking forward to things again. (Like reading and blogging.) Also not ev-er-y-thing stresses me out. (For a while, running errands felt like going into outer space and it took days to recover.)
I still have hard days, and many mornings start out challenging (anxiety tends to peak for me in the mornings) and my health concerns still crop up occasionally, especially fears about cancer, but I'm in a better place to mentally combat those thoughts, which is nice.
Reading... again! finally! and it feels so good! I am reading Brain on Fire, which I cannot put down. I have a huge stack of books on my nightstand that I also can't wait to dig into. Also, Modern Mrs. Darcy put out her Summer Reading list, and it's got me all kinds of excited for summer reading.
Hosting... my parents for a visit at the end of Mother's Day weekend and into the next week so they could see the twins play baseball and we could spend time together. It was such a lovely, relaxed visit. The best part was that they were able to sneak Jack & Logan away Tuesday morning for some much needed special time. They took out their kayaks on the lake, then rented paddle boards (which the twins were naturals on!) and even went to the sand dunes and swam around for a while. The twins really needed that bit of special attention after the past month of Wyatt getting all the extra attention around here. I'm so grateful that they could fill their buckets like that. Best grandparents ever!
Loving... our new front gate so much! It keeps Carly safe, and she loves being the one to open it on the way to the car. I also love how cute it is!
Giving... Wyatt breathing treatments with the nebulizer at school once a day this week as needed. Thankfully he only needed them twice. Wednesday when I went, his peak flow was high enough to not need any albuterol, and Thursday his peak flow was 250 in the morning (that's his normal number!) so I didn't have to go check on him at all! Hallelujah! Thank you so much for all your thoughts and prayers throughout this scary & stressful time. I am so grateful he's improving and am enjoying everyday, but I'll be honest, I am still kind of holding my breath because he hasn't tapered off the steroids just yet, and last time it wasn't until he'd been off the steroids four days that we saw him decline again. So only time will tell!
Tuesday when we stopped by, he had been testing, so we were there later than usual and bumped into his lunch time, so we stayed and had lunch with him. He was tickled! Since I have two fourth graders, I know to cherish this precious time where he still loves having me around. ;) He's such a sweet boy.
Testing... Wyatt's hearing at the Ear, Nose and Throat doctor Thursday morning. Luckily his hearing has not been impacted by his three months of back to back ear infections. The ENT doctor said he wants to see us back in a month and if the fluid has resolved itself, we will leave Wyatt's ears alone. If, however, the fluid is still in there, then we will know that Wyatt's ears are not doing their job, and we need to help them by putting tubes in. So we'll go back again near the end of June. I am glad not to rush into anything.
Solving... the mystery of the Amazon gift from last week. It was none other than Josh's amazing sister, and one of my besties, Julie. She said she can't do much from far away, but she figured she could put a smile on my face by sending me that t-shirt and those cool pens. And boy was she right! What a total sweetheart!
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1 comment:
I had so much fun Shelly! Thank you!! Carly couldn't be more fun, so precious and loving. The twins playing baseball was incredible!! Wyatt is just a joy, and I am proud of him for his attitude about his treatments. And I am so very happy that you are feeling better. It's wonderful that you're feeling like you!! I love your home and love the hard work that Josh and you have done!!
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